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Patient-reported outcomes help improve cancer treatment

2 April 2008

Information technology is improving cancer treatment by enabling clinically relevant data to be collected by patients at home without direct intervention by medical staff.

Patient reported outcomes (PROs) are self-assessments that measure any aspect relating to health status that come directly from the patient without any interpretation by the healthcare team. With its Patient Assessment, Care, and Education (PACE) system, Memphis-based Supportive Oncology Services has helped pioneer the efficient use of PROs in the community oncology setting, where more than 85% of all cancer patients are treated.

The system, which has been used by over 100 cancer clinics throughout the US since 2001, enables patients to complete a comprehensive physical and psycho-social assessment before each physician visit.

The PACE System uses touchscreen wireless tablet PCs with three software applications: The Patient Care Monitor (PCM), the Cancer Support Network (CSN), and Total Access.

The Patient Care Monitor is a patient self-assessment that produces a comprehensive review of systems (ROS) and report of past family and social history. The PCM Report provides an at-a-glance snapshot of patient symptoms and how they are improving or worsening.

The Cancer Support Network (CSN) provides information about cancer — its diagnosis, treatment, symptom management, and emotional wellness. It features over 300 videos featuring real patients, physicians and nurses and over 450 text documents.

Total Access enables cancer clinic staff to perform administrative functions for the system via the Internet. It gives access to all patient PCM reports, print specific educational materials and provides a record of patient education.

Duke University's Comprehensive Cancer Care Center has adopted the system in research projects across its Oncology Supportive Care department. Duke researchers presented findings at the 2007 American Society of Clinical Oncology (ASCO) annual meeting, demonstrating how the system "offers a valid, feasible method for collecting research-quality, clinically relevant data from patients in outpatient academic oncology".

According to SOS Chief Medical Officer Dr Kurt Tauer, "Effective cancer care requires treating more than the tumour; it necessitates taking care of the whole patient, addressing dozens of physical symptoms as well as psychological and social needs that accompany a cancer diagnosis. From dealing with the prospects of a potential death sentence to handling home healthcare needs, cancer patients and their families can quickly become overwhelmed with all that faces them. PROs delivered via the PACE System help physicians alleviate areas of patient discomfort or distress, thus improving quality of life."

 
 

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