Patients and relatives tell us what they need to know through their
narratives: an exploratory qualitative study
Patient Informatics Specialist Sheila Wilson describes a method
for establishing an evidence base for providing information for patients.
ABSTRACT
This project followed a large systematic literature review. It used a
discovery interview approach to explore the information given to, and wanted
by, Wirral patients with colorectal cancer and their relatives, at each
stage of their care experience. Findings were examined stage by stage for
patients and for relatives separately.
Comparison was made between the two groups and with the national and
international literature. Findings were charted to provide a summary of
information given; information wanted; the most important information; and
additional information sought by the patients and their relatives.
The findings of this exploratory study will help us to improve the match
between our services (electronic patient information) and the needs of those
who depend on them. Results can be applied in any medium (paper, video,
audio and verbal language).
Br J Healthcare Comput Info Manage 2005; 22(4): 21-2. |
